Kiss My A.S. (Ankylosing Spondylitis)
Learning to Live with Ankylosing Spondylitis
There. I said it. I hate the spoon theory. What is this "spoon theory", you ask? It's a metaphor developed by a woman named Christine Miserandino, who has Lupus. This was her attempt to describe what it means to be chronically ill. In the chronic illness community, it's become shorthand for describing our conditions, our energy… Continue reading I Hate the Spoon Theory
Chronic illness leaves you feeling like you’re letting everyone down—especially yourself. It’s a constant game of adjusting expectations, rethinking assumptions, and regulating hopes. That deadline you’re trying to meet, that show you really wanted to go to, the pile of dishes in your sink, your friends who you want to see… all of these priorities… Continue reading The things no one tells you when you are diagnosed with a painful chronic illness…